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UID:10000991-1769432400-1769437800@als-ny.blackbaudwp.com
SUMMARY:Caregivers Only Support Group
DESCRIPTION:Support Groups provide an opportunity for those living with ALS\, family members\, caregivers\, and friends to come together to share stories\, and hear the experiences of others living with the disease. While support groups are regional\, anyone can attend any group that works for their schedule. \nFacilitator: Care Services Team Member. Contact Chris Dunn at dunn@als-ny.org or 212.720.3044 for more information or Zoom link.
URL:https://als-ny.blackbaudwp.com/event/caregivers-only-support-group-2-2-2-2/2026-01-26/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://als-ny.blackbaudwp.com/wp-content/uploads/2022/09/support-group.jpeg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260121T120000
DTEND;TZID=America/New_York:20260121T130000
DTSTAMP:20260606T142748
CREATED:20260106T154556Z
LAST-MODIFIED:20260106T155133Z
UID:10001476-1768996800-1769000400@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - ALL ALS: Learn How You Can Get Involved in ALS Research
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nALL ALS: Learn How You Can Get Involved in ALS Research. Presenters: Emma Goldberg\, PhD\, & Emma Allen – ALL ALS Research Consortium. The Access for All in ALS (ALL ALS) Consortium is a nationwide effort\, funded by the National Institutes of Health\, that aims to make ALS research more accessible to all people impacted by the disease. Learn how and why ALS community participation is crucial\, and an overview of what participants can expect.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-all-als-learn-how-you-can-get-involved-in-als-research/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260115T190000
DTEND;TZID=America/New_York:20260115T203000
DTSTAMP:20260606T142748
CREATED:20231221T160729Z
LAST-MODIFIED:20260209T163441Z
UID:10000696-1768503600-1768509000@als-ny.blackbaudwp.com
SUMMARY:New Jersey Support Group
DESCRIPTION:Support Groups provide an opportunity for those living with ALS\, family members\, caregivers and friends to come together to share stories\, hear the experiences of others living with the disease and to get information. While support groups are regional\, anyone can attend any group that works for their schedule. \nContacts: \nMary Ann Mertz\, RN\, (908) 552-5573\,mmertz@als-ny.org\nMelissa Braxton\, MSW\, (908) 587-6386\, mbraxton@als-ny.org
URL:https://als-ny.blackbaudwp.com/event/new-jersey-support-group-2-2-2/2026-01-15/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Support Group
ATTACH;FMTTYPE=image/jpeg:https://als-ny.blackbaudwp.com/wp-content/uploads/2022/09/support-group.jpeg
ORGANIZER;CN="Mary Ann Mertz%2C RN":MAILTO:mmertz@als-ny.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260115T180000
DTEND;TZID=America/New_York:20260115T193000
DTSTAMP:20260606T142748
CREATED:20260106T154034Z
LAST-MODIFIED:20260106T154143Z
UID:10001475-1768500000-1768505400@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - Preparing for your Clinic Visit
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Theresa Imperato\, RN\, Clinical Specialist for ALS United Greater New York. What to expect during an ALS Center/Clinic visit.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-preparing-for-your-clinic-visit/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260113T180000
DTEND;TZID=America/New_York:20260113T193000
DTSTAMP:20260606T142748
CREATED:20260106T153829Z
LAST-MODIFIED:20260106T153829Z
UID:10001474-1768327200-1768332600@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - Adaptive Vehicles
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Dan Bussani\, Bussani Mobility Learn the ins & outs of obtaining an adaptive vehicle.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-adaptive-vehicles/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251217T120000
DTEND;TZID=America/New_York:20251217T130000
DTSTAMP:20260606T142748
CREATED:20251120T183859Z
LAST-MODIFIED:20251120T183859Z
UID:10001456-1765972800-1765976400@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. "Ask the Doc"
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Daniel MacGowan\, MD\, Neurologist\, Mount Sinai ALS Clinic. Dr. MacGowan will answer questions & discuss common concerns patients & families have when living with ALS.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-ask-the-doc/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T180000
DTEND;TZID=America/New_York:20251209T193000
DTSTAMP:20260606T142748
CREATED:20251120T183614Z
LAST-MODIFIED:20251120T183614Z
UID:10001455-1765303200-1765308600@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect - When To Consider Getting Home Care
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Phil Swift\, Elder Care Homecare – Join us for ideas on when it is a good time to consider home care.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-when-to-consider-getting-home-care/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
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