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X-WR-CALNAME:ALS United Greater New York
X-ORIGINAL-URL:https://als-ny.blackbaudwp.com
X-WR-CALDESC:Events for ALS United Greater New York
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DTSTART;TZID=America/New_York:20260530T090000
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DTSTAMP:20260606T102915
CREATED:20260129T214315Z
LAST-MODIFIED:20260129T214315Z
UID:10001485-1780131600-1780146000@als-ny.blackbaudwp.com
SUMMARY:WALK ALS - Westchester\, NY
DESCRIPTION:Your participation\, commitment\, and efforts through the Walk ALS program are crucial in supporting the ALS community in every way possible. Funds raised through our Walks contribute to advancing groundbreaking research\, maintaining patient care continuity\, and championing advocacy for those affected by ALS.
URL:https://als-ny.blackbaudwp.com/event/walk-als-westchester-ny/
LOCATION:Manhattanville University\, 2900 Purchase St.\, Purchase\, New York\, 10577
CATEGORIES:Walk
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T090000
DTEND;TZID=America/New_York:20260502T130000
DTSTAMP:20260606T102915
CREATED:20260129T213928Z
LAST-MODIFIED:20260129T213928Z
UID:10001484-1777712400-1777726800@als-ny.blackbaudwp.com
SUMMARY:WALK ALS - New York City
DESCRIPTION:Your participation\, commitment\, and efforts through the Walk ALS program are crucial in supporting the ALS community in every way possible. Funds raised through our Walks contribute to advancing groundbreaking research\, maintaining patient care continuity\, and championing advocacy for those affected by ALS.
URL:https://als-ny.blackbaudwp.com/event/walk-als-new-york-city/
LOCATION:South Street Seaport – Pier 16\, Pier 16\, New York\, New York\, 10038
CATEGORIES:Walk
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260315T080000
DTEND;TZID=America/New_York:20260315T120000
DTSTAMP:20260606T102915
CREATED:20260129T220817Z
LAST-MODIFIED:20260129T220817Z
UID:10001490-1773561600-1773576000@als-ny.blackbaudwp.com
SUMMARY:TEAM ALS - NYC Half Marathon
DESCRIPTION:Come cheer on Team ALS\, ALS United Greater New York’s endurance athletes who are taking on major events like the TCS New York City Marathon\, NYC Half\, and Five Boro Bike Tour to raise critical funds in the fight against ALS. Your support along the course helps power research\, patient services\, and advocacy for families across our region. Join us to celebrate their dedication and show the ALS community strong support—no running required. Contact Charlotte Seto at (212) 720-3054 for the exact cheer zone location.
URL:https://als-ny.blackbaudwp.com/event/team-als-nyc-half-marathon/
CATEGORIES:Featured
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ORGANIZER;CN="Charlotte Seto":MAILTO:cseto@als-ny.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260226T180000
DTEND;TZID=America/New_York:20260226T193000
DTSTAMP:20260606T102915
CREATED:20260106T161117Z
LAST-MODIFIED:20260106T161117Z
UID:10001480-1772128800-1772134200@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - ALS Communication Options
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenters: Debra Zeitlin & Team Bridging Voice.  Learn how to make communication possible for people with ALS
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-als-communication-options/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T120000
DTEND;TZID=America/New_York:20260211T130000
DTSTAMP:20260606T102915
CREATED:20260106T160401Z
LAST-MODIFIED:20260106T160401Z
UID:10001479-1770811200-1770814800@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - Writing Exercise/Reclaiming Intimacy & Connection/Love Note Workshop
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Amy Lyle-Wilson\, MA\, MTS Author/Editor. Whether you’re new to writing or seasoned in journaling\, this workshop invites you to connect\, reflect\, and find comfort—one heartfelt word at a time. \n  \n 
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-writing-exercise-reclaiming-intimacy-connection-love-note-workshop/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T180000
DTEND;TZID=America/New_York:20260210T193000
DTSTAMP:20260606T102915
CREATED:20260106T155934Z
LAST-MODIFIED:20260106T155934Z
UID:10001478-1770746400-1770751800@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - Fall Prevention with a Physical Therapist
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Fondre Goulburne\, PT\, Columbia University Medical Center. Learn about safe transfers with Physical Therapist\, Fondre Goulburne.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-fall-prevention-with-a-physical-therapist/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260205T190000
DTEND;TZID=America/New_York:20260205T203000
DTSTAMP:20260606T102915
CREATED:20260106T155548Z
LAST-MODIFIED:20260106T155548Z
UID:10001477-1770318000-1770323400@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - Newly Diagnosed
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nNewly Diagnosed-Presenters: Charisse\, MaryAnn\, Melissa\, New Jersey Regional Team\, ALS United Greater New York An introductory summary of ALS for those newly diagnosed within the last 12 months.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-newly-diagnosed/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260121T120000
DTEND;TZID=America/New_York:20260121T130000
DTSTAMP:20260606T102915
CREATED:20260106T154556Z
LAST-MODIFIED:20260106T155133Z
UID:10001476-1768996800-1769000400@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - ALL ALS: Learn How You Can Get Involved in ALS Research
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nALL ALS: Learn How You Can Get Involved in ALS Research. Presenters: Emma Goldberg\, PhD\, & Emma Allen – ALL ALS Research Consortium. The Access for All in ALS (ALL ALS) Consortium is a nationwide effort\, funded by the National Institutes of Health\, that aims to make ALS research more accessible to all people impacted by the disease. Learn how and why ALS community participation is crucial\, and an overview of what participants can expect.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-all-als-learn-how-you-can-get-involved-in-als-research/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260115T180000
DTEND;TZID=America/New_York:20260115T193000
DTSTAMP:20260606T102915
CREATED:20260106T154034Z
LAST-MODIFIED:20260106T154143Z
UID:10001475-1768500000-1768505400@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - Preparing for your Clinic Visit
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Theresa Imperato\, RN\, Clinical Specialist for ALS United Greater New York. What to expect during an ALS Center/Clinic visit.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-preparing-for-your-clinic-visit/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260113T180000
DTEND;TZID=America/New_York:20260113T193000
DTSTAMP:20260606T102915
CREATED:20260106T153829Z
LAST-MODIFIED:20260106T153829Z
UID:10001474-1768327200-1768332600@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. - Adaptive Vehicles
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Dan Bussani\, Bussani Mobility Learn the ins & outs of obtaining an adaptive vehicle.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-adaptive-vehicles/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251217T120000
DTEND;TZID=America/New_York:20251217T130000
DTSTAMP:20260606T102915
CREATED:20251120T183859Z
LAST-MODIFIED:20251120T183859Z
UID:10001456-1765972800-1765976400@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect. "Ask the Doc"
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Daniel MacGowan\, MD\, Neurologist\, Mount Sinai ALS Clinic. Dr. MacGowan will answer questions & discuss common concerns patients & families have when living with ALS.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-ask-the-doc/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T180000
DTEND;TZID=America/New_York:20251209T193000
DTSTAMP:20260606T102915
CREATED:20251120T183614Z
LAST-MODIFIED:20251120T183614Z
UID:10001455-1765303200-1765308600@als-ny.blackbaudwp.com
SUMMARY:Talk. Learn. Connect - When To Consider Getting Home Care
DESCRIPTION:Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. \nPresenter: Phil Swift\, Elder Care Homecare – Join us for ideas on when it is a good time to consider home care.
URL:https://als-ny.blackbaudwp.com/event/talk-learn-connect-when-to-consider-getting-home-care/
LOCATION:Virtual\, Contact Organizer for Information
CATEGORIES:Talk. Learn. Connect.
ATTACH;FMTTYPE=image/png:https://als-ny.blackbaudwp.com/wp-content/uploads/2023/11/ALSU-TLC-1-1.png
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