{"id":1702,"date":"2022-08-31T11:13:44","date_gmt":"2022-08-31T15:13:44","guid":{"rendered":"https:\/\/alsagoldenwest.blackbaudwp.com\/navigating-als\/support-groups\/"},"modified":"2025-05-28T17:55:34","modified_gmt":"2025-05-28T21:55:34","slug":"education-support","status":"publish","type":"page","link":"https:\/\/als-ny.blackbaudwp.com\/es\/navigating-als\/education-support\/","title":{"rendered":"Educaci\u00f3n y recursos"},"content":{"rendered":"<p>Como servicio a la comunidad de ALS, hemos proporcionado varios recursos, incluidas publicaciones y videos, para brindar a los visitantes la posibilidad de acceder r\u00e1pida y f\u00e1cilmente a informaci\u00f3n sobre una variedad de temas como:<\/p><ul><li>Comprender los aspectos psicol\u00f3gicos y emocionales de vivir con ELA<\/li><li>Los cuidados paliativos como una capa adicional de apoyo para las personas que viven con ELA<\/li><li>Accesibilidad en el hogar: C\u00f3mo adaptar su hogar para que sea seguro y accesible<\/li><li>Comprenda sus opciones de atenci\u00f3n respiratoria<\/li><li>Evaluaci\u00f3n de silla de ruedas<\/li><li>\u00bfQu\u00e9 importancia tienen las vitaminas y los minerales en la ELA?<\/li><li>Defensa de la ELA para todos: Comprender las pol\u00edticas sobre la ELA<\/li><li>C\u00f3mo manejar el habla y la degluci\u00f3n mientras se vive con ELA<\/li><li>Ensayos cl\u00ednicos de ELA y el Consorcio NEALS<\/li><li>Tres perspectivas de vivir con ELA<\/li><li>\u00a1y mucho m\u00e1s!<\/li><\/ul>\t\t\n\t\t<h2>\n\t\t\tCumbre de Educaci\u00f3n y Recursos\n\t\t<\/h2>\n\t\t\t<p>A continuaci\u00f3n, encontrar\u00e1 varios videos \u00fatiles sobre diversos temas que pueden ayudarle en su experiencia con la ELA. Tambi\u00e9n tenemos muchos otros en nuestra... <a href=\"https:\/\/www.youtube.com\/playlist?list=PLeZXu9VcU4haBo4krUVbiNGBb-pVMuNWS\">Canal de YouTube. <\/a><\/p>\t\t\n\t<meta itemprop=\"name\" content=\"Keynote The ALS Association Greater New York Chapter&#039;s second annual Education and Resource Summit: Navigating the ALS Journey.\" \/><meta itemprop=\"description\" content=\"Keynote ALS Education Summit\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-1.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=oI_ZubpygWY\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=oI_ZubpygWY\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/oI_ZubpygWY?feature=oembed&amp;start&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\" title=\"Bienvenida y Sesi\u00f3n 1: Comprender sus opciones de atenci\u00f3n respiratoria\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"Advancements in ALS Research\" \/><meta itemprop=\"description\" content=\"ALS Research\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Copy-of-Summit-2022-5.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=553MK3p4k2Q\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=553MK3p4k2Q\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/553MK3p4k2Q?feature=oembed&amp;start&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"Untangling the ALS X Files\" \/><meta itemprop=\"description\" content=\"Richard Bedlack explains alternative ALS Information\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Copy-of-Summit-2022-6.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=dW6VKSAVBrs\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=dW6VKSAVBrs\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/dW6VKSAVBrs?feature=oembed&amp;start=8&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=1&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"Living with ALS Sexuality &amp; Intimacy\" \/><meta itemprop=\"description\" content=\"ALS Education Summit\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-3.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=D7R_FOt0n_A\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=D7R_FOt0n_A\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/D7R_FOt0n_A?feature=oembed&amp;start=7&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"Voice Preservation\" \/><meta itemprop=\"description\" content=\"ALS Voice Banking\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-5.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=uq0qzAzWr14\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=uq0qzAzWr14\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/uq0qzAzWr14?feature=oembed&amp;start=6&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"A Caregiver&#039;s Journey\" \/><meta itemprop=\"description\" content=\"Learning about ALS caregiver\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-6.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=Oxh3p6qv1n4\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=Oxh3p6qv1n4\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/Oxh3p6qv1n4?feature=oembed&amp;start=5&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"Haw to Manage Stress While Living with ALS\" \/><meta itemprop=\"description\" content=\"Stress relief living with ALS\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-7.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=fDaclBrrQEE\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=fDaclBrrQEE\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/fDaclBrrQEE?feature=oembed&amp;start=4&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"Haw to Manage Stress While Living with ALS\" \/><meta itemprop=\"description\" content=\"Stress relief living with ALS\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-7.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=gcOgYFYs0CY\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=gcOgYFYs0CY\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/gcOgYFYs0CY?feature=oembed&amp;start=1&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"Haw to Manage Stress While Living with ALS\" \/><meta itemprop=\"description\" content=\"Stress relief living with ALS\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-7.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=TFodX57vV4U\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=TFodX57vV4U\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/TFodX57vV4U?feature=oembed&amp;start=5&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"How to Talk about ALS with Family\" \/><meta itemprop=\"description\" content=\"How to talk about ALS\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-02T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-8.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=vkF-nTJu64g\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=vkF-nTJu64g\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/vkF-nTJu64g?feature=oembed&amp;start=3&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"How to Talk about ALS with Family\" \/><meta itemprop=\"description\" content=\"How to talk about ALS\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-02T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-8.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=_Cv5z8ce5mA\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=_Cv5z8ce5mA\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/_Cv5z8ce5mA?feature=oembed&amp;start=10&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"How to Talk about ALS with Family\" \/><meta itemprop=\"description\" content=\"How to talk about ALS\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-02T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-8.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=z0Dp45ftG8c\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=z0Dp45ftG8c\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/z0Dp45ftG8c?feature=oembed&amp;start=3&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"New York Medical Aid in Dying\" \/><meta itemprop=\"description\" content=\"ALS conversation Dying Policy\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-10.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=APtszleiXCo\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=APtszleiXCo\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/APtszleiXCo?feature=oembed&amp;start=2&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"New York Medical Aid in Dying\" \/><meta itemprop=\"description\" content=\"ALS conversation Dying Policy\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-10.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=mDiS6E_2t64\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=mDiS6E_2t64\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/mDiS6E_2t64?feature=oembed&amp;start=8&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t<meta itemprop=\"name\" content=\"New York Medical Aid in Dying\" \/><meta itemprop=\"description\" content=\"ALS conversation Dying Policy\" \/><meta itemprop=\"uploadDate\" content=\"2022-12-06T10:00America\/New_York\" \/><meta itemprop=\"thumbnailUrl\" content=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2022\/12\/Summit-2022-10.png\" \/><meta itemprop=\"contentUrl\" content=\"https:\/\/www.youtube.com\/watch?v=Wge2KuGlBUg\" \/><meta itemprop=\"embedUrl\" content=\"https:\/\/www.youtube.com\/watch?v=Wge2KuGlBUg\" \/>\t\n\t<iframe allowfullscreen allow=\"autoplay\" data-src=\"https:\/\/www.youtube.com\/embed\/Wge2KuGlBUg?feature=oembed&amp;start=6&amp;end&amp;wmode=opaque&amp;loop=0&amp;controls=1&amp;mute=0&amp;rel=0&amp;modestbranding=0\"><\/iframe>\t\t\n\t\t\t<a href=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2024\/03\/ALS-RespiratoryGuide-24.pdf\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t\tGu\u00eda respiratoria descargable\n\t\t\t\t\t<\/a>\n\t\t\t<a href=\"https:\/\/als-ny.blackbaudwp.com\/wp-content\/uploads\/2024\/05\/Please-Read-I-have-ALS.pdf\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t\ttengo tarjeta ALS\n\t\t\t\t\t<\/a>\n\t\t<h3>\n\t\t\t\u00a1Solo podemos ofrecer servicios gratuitos con la ayuda de donantes y recaudadores de fondos como usted!\n\t\t<\/h3>\n\t\t\t<a href=\"https:\/\/secure.als-ny.org\/site\/Donation2?df_id=1500&#038;mfc_pref=T&#038;1500.donation=form1\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t\tDonar\n\t\t\t\t\t<\/a>\n\t\t\t<a href=\"https:\/\/als-ny.blackbaudwp.com\/es\/get-involved\/create-a-fundraiser\/\" target=\"_self\" rel=\"noopener\">\n\t\t\t\t\t\t\trecaudar fondos\n\t\t\t\t\t<\/a>","protected":false},"excerpt":{"rendered":"<p>Como servicio a la comunidad de ALS, hemos proporcionado varios recursos, incluidas publicaciones y videos, para brindar a los visitantes la posibilidad de acceder r\u00e1pida y f\u00e1cilmente a informaci\u00f3n sobre una variedad...<\/p>","protected":false},"author":47,"featured_media":0,"parent":1681,"menu_order":35,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-1702","page","type-page","status-publish","hentry"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/als-ny.blackbaudwp.com\/es\/wp-json\/wp\/v2\/pages\/1702","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/als-ny.blackbaudwp.com\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/als-ny.blackbaudwp.com\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/als-ny.blackbaudwp.com\/es\/wp-json\/wp\/v2\/users\/47"}],"replies":[{"embeddable":true,"href":"https:\/\/als-ny.blackbaudwp.com\/es\/wp-json\/wp\/v2\/comments?post=1702"}],"version-history":[{"count":10,"href":"https:\/\/als-ny.blackbaudwp.com\/es\/wp-json\/wp\/v2\/pages\/1702\/revisions"}],"predecessor-version":[{"id":6984,"href":"https:\/\/als-ny.blackbaudwp.com\/es\/wp-json\/wp\/v2\/pages\/1702\/revisions\/6984"}],"up":[{"embeddable":true,"href":"https:\/\/als-ny.blackbaudwp.com\/es\/wp-json\/wp\/v2\/pages\/1681"}],"wp:attachment":[{"href":"https:\/\/als-ny.blackbaudwp.com\/es\/wp-json\/wp\/v2\/media?parent=1702"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}