{"id":7168,"date":"2025-08-13T16:36:55","date_gmt":"2025-08-13T20:36:55","guid":{"rendered":"https:\/\/als-ny.org\/?page_id=7168"},"modified":"2025-08-26T15:47:57","modified_gmt":"2025-08-26T19:47:57","slug":"summer-newsletter-2025","status":"publish","type":"page","link":"https:\/\/als-ny.blackbaudwp.com\/es\/summer-newsletter-2025\/","title":{"rendered":"Bolet\u00edn de verano 2025"},"content":{"rendered":"\n\n\t\t\n\t\t\t

Summer’s not over yet – and neither is our momentum in the fight against ALS.\u00a0 Your continued dedication helps drive advances in care, research, and advocacy, bringing us closer to a future without ALS.In May, ALS Awareness Month lit up New York City and beyond with energy, visibility, and action – from Times Square displays to advocacy meetings in Albany and Washington, D.C. See all we did for ALS Awareness Month here.<\/a>In June and July, we celebrated ALS Awareness Day<\/strong> at baseball parks across New York, connecting with fans and sharing our mission with thousands. In\u00a0August, our community came together once again for the\u00a08th Annual Iron Horse Golf Classic<\/strong>\u00a0and\u00a0Long Island Family Connection Day<\/strong>, two events that brought supporters and families together in meaningful ways.Looking ahead, there’s still so much to be part of this year. Join us for one of our three Fall WALK ALS<\/strong> events, cheer Team ALS<\/strong> at the TCS NYC Marathon,\u00a0 and attend the Lou Gehrig Legacy Gala on November 11th.<\/strong> Scroll down to learn more about these events and how your support continues to make a difference every day.<\/p>

Together, we end ALS.<\/h6>\t\t\n\t
CARE SERVICES<\/strong><\/h6>\n

On June 5th, ALS United Greater New York Care Service facilitators led a group discussion on the topic of Women and ALS. This was the first time a program was designed specifically for people who identify as women living with ALS. Years of experience have taught us that although ALS symptoms are universal among genders, women experience a unique set of challenges when it comes to living with the disease. These challenges take many forms, both physical and emotional.\u00a0<\/p>\n

Mary Ann Mertz, Care Coordinator and Clinic Coordinator at our Rutgers RWJ ALS Clinic, shared valuable insights on reproductive health and practical coping strategies for managing the disease on a day-to-day basis. Following her presentation, our Chief Care Services Officer, Debbie Schlossberg, led a structured discussion exploring topics such as identity, body image, and the ways ALS can affect personal relationships.\u00a0<\/p>\n

The discussion was lively and robust, with appreciation expressed by attendees. One participant immediately emailed and said she loved the group. When asked what specifically resonated with her, she replied, “You got to participate and listen to the other ladies and hear different perspectives…Miss Debbie posed questions out there for us to think about, which was very good, and then waited for us to open up. Definitely would do this again. We were on for an hour and 30 minutes, and there still wasn’t enough time.<\/em>”\u00a0<\/p>\n\t\t\t\n\t\t\t\t\t\t\tClick Here For Support Groups and Additional Educational Resources \n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\"Women\n\t\t\t\t\t\t\t\t\t\"Walks\n\t

WALK ALS<\/strong><\/h6>\n

ALS United Greater New York had a solid start to the 2025 Walk ALS season. We hosted three Walks throughout the region this spring: Walk ALS New York City on Saturday, May 3rd, Walk ALS Westchester on Saturday, May 31st, and Walk ALS North Jersey on Sunday, June 8th. \u00a0<\/p>\n

There is still time to register for the upcoming fall Walks. You can join us on the following dates:\u00a0<\/p>\n