News & Publications
On September 29th, the FDA approved AMX0035 (now known as Relyvrio) to treat people living with ALS. Relyvrio, while not a cure, is a victory for the entire ALS community…
Publications
- FY 2027 Federal Funding Requests
- 2025 Year in Review
- Fall 2025 Newsletter
- Summer 2025 Newsletter
- Advocacy Newsletter July 2025
- Protect Medicaid Letter
- Spring Newsletter 2025
- FY 2026 Federal Funding Requests
- Cuts to NIH Letter
- 2024 Year in Review
- Fall 2024 Newsletter
- Summer 2024 Newsletter
- Medical Aid in Dying Memo of Support
- Spring 2024 Newsletter
- 2023 Year in Review
- Fall 2023 Newsletter
- Summer 2023 Newsletter
- Spring 2023 Newsletter
- 2022 Year In Review
- Fall 2022 Newsletter
- 2021 Year In Review
- Fall 2021 Newsletter
- Summer 2021 Newsletter
- Winter 2021 Newsletter
- Fall 2020 Newsletter
- Summer 2020 Newsletter