News & Publications

We are thrilled to announce an exciting expansion of our Accessibility Services team, bringing even more expertise, innovation, and hands-on support to individuals and families living with ALS.  Our program now…

Living with ALS can present profound emotional and psychological challenges that require compassionate, specialized support. Thanks to the generous vision and leadership of Tom and Jill Pulley, we are proud…

Dan is the love of my life. I am not one prone to effusive pronunciations of feelings, but in this case, it is true. We met over 20 years ago…

Last week, our ALS United Greater New York family experienced a profound loss with the passing of two of our founding board members, Alan Griffith and Alice Claar. They were two extraordinary leaders whose…

ALS at any age is devastating, but when Dave was diagnosed in the Summer of 2023 at age 44, our children were just 13 and 10.  Obviously, you can’t pause…

In the summer of 2022, several months after my husband’s legs didn’t seem to work anymore, we learned that they suspected he had ALS.  I recall one day, soon after I…

When my dad was diagnosed with ALS at 73, he was the most active human I knew. He had the energy to live life to its fullest—on top of being…

On November 11 at Pier Sixty, ALS United Greater New York hosted its annual Lou Gehrig Legacy Gala, bringing together supporters, advocates, and leaders in the ALS community for an…

In early spring, ALS United Greater New York partnered with Assemblyman Steve Stern and Senator Jessica Scarcella-Spanton to introduce the ALS Registry Legislation (A7845/S6413), a groundbreaking bill designating ALS as…

This is a story of love and caregiving – spoiler alert, not all stories of love and caregiving necessarily have completely happy endings. I’m Elliot, and in April 2022, my…