News & Publications

NIH Must Reverse and Retract Cap of Indirect Cost Rates

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ALS United Greater New York stands with the ALS community nationwide in opposing devastating cuts to research grants at the National Institutes of Health (NIH). We strongly urge the National…

A Needle, A Thread, and A Tradition: A Story of Art and Resilience

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Maritza Namuche was diagnosed with ALS in 2024, and her diagnosis has not stopped her from creating beauty. From a young age, Maritza was fortunate to learn the art of…

What Type of Doctor Treats ALS? Understanding ALS Medical Care

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Table of Contents Summary What Type of Doctor Treats ALS? Understanding ALS Medical Care Neurologists: The Primary ALS Specialists The Role of Neuromuscular Disease Experts Importance of Early Diagnosis and…

15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

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Feb. 7, 2025 /PRNewswire/ — Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS…

ALS vs MS: Understanding the Differences and Similarities

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Table of Contents Summary Introduction to ALS and MS Defining ALS and MS Prevalence and demographics Common misconceptions Causes and Risk Factors Genetic factors in ALS and MS Environmental influences…

In Gratitude for Caregivers this Thanksgiving. A Reflection on National Caregiver’s Month

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In the spirit of Thanksgiving, Sandy and I will spend the day gathered at a large table surrounded by friends and family at Charlie Brown’s, the very restaurant where we…

A Recipe for Caregiving: Love, Loss, and Lessons from My Mom’s ALS Battle for Family Caregivers Month

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My mom’s slow-progressing symptoms began to worsen as the world shut down in 2020. The isolation blurred my perception of her reality, and it took me time to grasp the…

Caregiving and Marriage: How ALS Has Transformed Our Lives – “Rom & Tobin”

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In 1983, I spent two years teaching English in Japan. Around 1984, my parents came to visit, and it was during that trip that I first heard about ALS. My…

Lou Gehrig Legacy Gala 2024

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The ALS United Greater New York community gathered on November 12, 2024, for the annual Lou Gehrig Legacy Gala, a night dedicated to reflecting on the strides made in ALS…

Very Early ALS Symptoms: What to Look Out For

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At ALS United Greater New York, we’re committed to empowering our community with knowledge about Amyotrophic Lateral Sclerosis (ALS). This guide explores the early symptoms of ALS, emphasizing the importance of early detection and the variability of the disease. By understanding these signs, we can work together to improve diagnosis, care, and support for those affected by ALS.

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