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  • Hudson Valley Support Group

    Virtual Contact Organizer for Information

    Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Eileen Margenat, RN, (914) 705-9247, emargenat@als-ny.org Nancy Brenner,…

  • Talk. Learn. Connect. – Adaptive Vehicles

    Virtual Contact Organizer for Information

    Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Dan Bussani, Bussani Mobility Learn the ins & outs of obtaining an adaptive vehicle.

  • Talk. Learn. Connect. – Preparing for your Clinic Visit

    Virtual Contact Organizer for Information

    Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Theresa Imperato, RN, Clinical Specialist for ALS United Greater New York. What to expect during an ALS Center/Clinic visit.

  • New Jersey Support Group

    Virtual Contact Organizer for Information

    Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease and to get information. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Mary Ann Mertz, RN, (908) 552-5573,mmertz@als-ny.org…

  • Patients & Caregivers Support Group

    Virtual Contact Organizer for Information

    Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Charisse Viscomi-Santos, LPN, (201) 926-5374, csantos@als-ny.org

  • Caregiver Bereavement Support Group

    Caregiver Bereavement Support Group
    Virtual Contact Organizer for Information

    ALS United Greater New York offers support groups on the first & third Tuesday of the month at 2:30 to those who have lost a loved one to ALS. The support groups serve as opportunities for surviving caregivers and other family members of people with ALS to connect with others within safe spaces for feeling,…

  • Talk. Learn. Connect. – ALL ALS: Learn How You Can Get Involved in ALS Research

    Virtual Contact Organizer for Information

    Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. ALL ALS: Learn How You Can Get Involved in ALS Research. Presenters: Emma Goldberg, PhD, & Emma Allen - ALL ALS Research Consortium. The Access for All…

  • Caregivers Only Support Group

    Virtual Contact Organizer for Information

    Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Facilitator: Care Services Team Member. Contact Chris Dunn at…

  • James J. Peters Bronx VA Medical Center

    Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contacts: Michelle McKenzie, LMSW, (718) 644-1750, mmckenzie@als-ny.org Ernest…

  • New York City ALS Support Group

    Virtual Contact Organizer for Information

    Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contact: Jody Wiesel, PhD., (212) 720-3044, jod318@gmail.com

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