Calendar
Events
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Long Island Support Group
Support Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease and to get information. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Theresa Imperato, RN, (516) 946-5467, imperato@als-ny.org…
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Hudson Valley Support Group
Virtual Contact Organizer for InformationSupport Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Eileen Margenat, RN, (914) 705-9247, emargenat@als-ny.org Nancy Brenner,…
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Talk. Learn. Connect. – Newly Diagnosed
Virtual Contact Organizer for InformationTalk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Newly Diagnosed-Presenters: Charisse, MaryAnn, Melissa, New Jersey Regional Team, ALS United Greater New York An introductory summary of ALS for those newly diagnosed within the last 12…
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Talk. Learn. Connect. – Fall Prevention with a Physical Therapist
Virtual Contact Organizer for InformationTalk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Fondre Goulburne, PT, Columbia University Medical Center. Learn about safe transfers with Physical Therapist, Fondre Goulburne.
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Talk. Learn. Connect. – Writing Exercise/Reclaiming Intimacy & Connection/Love Note Workshop
Virtual Contact Organizer for InformationTalk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Amy Lyle-Wilson, MA, MTS Author/Editor. Whether you’re new to writing or seasoned in journaling, this workshop invites you to connect, reflect, and find comfort—one heartfelt word…
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Patients & Caregivers Support Group
Virtual Contact Organizer for InformationSupport Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Charisse Viscomi-Santos, LPN, (201) 926-5374, csantos@als-ny.org
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Caregiver Bereavement Support Group
Virtual Contact Organizer for InformationALS United Greater New York offers support groups on the first & third Tuesday of the month at 2:30 to those who have lost a loved one to ALS. The support groups serve as opportunities for surviving caregivers and other family members of people with ALS to connect with others within safe spaces for feeling,…
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New Jersey Support Group
Virtual Contact Organizer for InformationSupport Groups provide an opportunity for those living with ALS, family members, caregivers and friends to come together to share stories, hear the experiences of others living with the disease and to get information. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Mary Ann Mertz, RN, (908) 552-5573,mmertz@als-ny.org…
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Caregivers Only Support Group
Virtual Contact Organizer for InformationSupport Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Facilitator: Care Services Team Member. Contact Chris Dunn at…
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James J. Peters Bronx VA Medical Center
Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Contacts: Michelle McKenzie, LMSW, (718) 644-1750, mmckenzie@als-ny.org Ernest…