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  • Talk. Learn. Connect. – Newly Diagnosed

    Virtual Contact Organizer for Information

    Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Newly Diagnosed-Presenters: Charisse, MaryAnn, Melissa, New Jersey Regional Team, ALS United Greater New York An introductory summary of ALS for those newly diagnosed within the last 12…

  • Talk. Learn. Connect. – Fall Prevention with a Physical Therapist

    Virtual Contact Organizer for Information

    Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Fondre Goulburne, PT, Columbia University Medical Center. Learn about safe transfers with Physical Therapist, Fondre Goulburne.

  • Talk. Learn. Connect. – Writing Exercise/Reclaiming Intimacy & Connection/Love Note Workshop

    Virtual Contact Organizer for Information

    Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenter: Amy Lyle-Wilson, MA, MTS Author/Editor. Whether you’re new to writing or seasoned in journaling, this workshop invites you to connect, reflect, and find comfort—one heartfelt word…

  • Talk. Learn. Connect. – ALS Communication Options

    Virtual Contact Organizer for Information

    Talk. Learn. Connect. (TLC) series offers a variety of speakers and discussion topics to increase your knowledge about community resources and effective strategies for living with the disease. Presenters: Debra Zeitlin & Team Bridging Voice.  Learn how to make communication possible for people with ALS

  • TEAM ALS – NYC Half Marathon

    Come cheer on Team ALS, ALS United Greater New York’s endurance athletes who are taking on major events like the TCS New York City Marathon, NYC Half, and Five Boro Bike Tour to raise critical funds in the fight against ALS. Your support along the course helps power research, patient services, and advocacy for families…

  • WALK ALS – New York City

    South Street Seaport – Pier 16 Pier 16, New York, New York

    Your participation, commitment, and efforts through the Walk ALS program are crucial in supporting the ALS community in every way possible. Funds raised through our Walks contribute to advancing groundbreaking research, maintaining patient care continuity, and championing advocacy for those affected by ALS.

  • WALK ALS – Westchester, NY

    Manhattanville University 2900 Purchase St., Purchase, New York

    Your participation, commitment, and efforts through the Walk ALS program are crucial in supporting the ALS community in every way possible. Funds raised through our Walks contribute to advancing groundbreaking research, maintaining patient care continuity, and championing advocacy for those affected by ALS.

  • WALK ALS – North Jersey

    Saddle River County Park Saddle Brook, New Jersey

    Your participation, commitment, and efforts through the Walk ALS program are crucial in supporting the ALS community in every way possible. Funds raised through our Walks contribute to advancing groundbreaking research, maintaining patient care continuity, and championing advocacy for those affected by ALS.

  • Patients & Caregivers Support Group

    Virtual Contact Organizer for Information

    Support Groups provide an opportunity for those living with ALS, family members, caregivers, and friends to come together to share stories, and hear the experiences of others living with the disease. While support groups are regional, anyone can attend any group that works for their schedule. Contacts: Charisse Viscomi-Santos, LPN, (201) 926-5374, csantos@als-ny.org

  • Caregiver Bereavement Support Group

    Caregiver Bereavement Support Group
    Virtual Contact Organizer for Information

    ALS United Greater New York offers support groups on the first & third Tuesday of the month at 2:30 to those who have lost a loved one to ALS. The support groups serve as opportunities for surviving caregivers and other family members of people with ALS to connect with others within safe spaces for feeling,…

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