News & Publications

Special Tribute to Her ALS Story

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We are absolutely thrilled to shine a spotlight on Her ALS Story at the upcoming Lou Gehrig Legacy Gala, taking place on November 6th at Pier Sixty in New York…

Love, Poetry and Painting

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In 2022, Lou was diagnosed with ALS. However, a little over twenty years ago a love story of art and poetry began. Back in 2002, Mary and Lou crossed paths…

Learn About Care Services Update

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HOME VISITS Our local Care Services team is excited to offer in-person home visits once again throughout our region. We no longer require waivers or precautions, but safety remains our…

For the Love of Jemma – Family Raises Over $2 Million For ALS Research

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Long Island Walk to Defeat ALS Team on their 18-Year Quest to Conquer the Disease, Raises Over $2 Million for Research For the past 18 years, countless family members and…

New Jersey State Budget Allocates $1.5 Million in State Budget for Those Living with ALS.

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The Greater New York Chapter and The Philadelphia Chapter of The ALS Association extended their heartfelt gratitude to the New Jersey State Legislature and Governor Murphy for their commitment to…

Legislature Should Pass Genetic Testing Protections for Insured

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Currently, insurance companies in New York can charge higher premiums or deny coverage based on genetic test results. It’s a shocking reality affecting individuals and families living with ALS, also…

ALS Month – Spotlight on Our Clinics

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May is ALS Awareness Month and we’re excited to shed some light on the amazing work our clinic and care service teams do to bring renewed hope to families affected…

FDA Committee Recommends Accelerated Approval of Tofersen

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The Food and Drug Administration (FDA) held a virtual meeting of the Peripheral and Central Nervous System Drugs Advisory Committee on March 22, 2023, to review data supporting tofersen’s New…

Living with ALS: A Journey of Resilience

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When we both retired from long careers, my wife and I decided we had enough of New Jersey winters, so we purchased a second home in Florida. We have been…

The Greater New York Chapter Receives a $30,000 Quality of Life Grant from The Christopher & Dana Reeve Foundation

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The ALS Association Greater New York Chapter is proud to announce that it has been awarded $30,000 as part of the Christopher & Dana Reeve Foundation National Paralysis Resource Center…

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