News & Publications

Honoring the Legacy of Dr. Leonard Tow

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ALS United Greater New York mourns the recent passing of Dr. Leonard Tow, whose generosity and vision helped to transform the landscape of ALS research and care. It is with…

Legacy of Impact: The Lois Altman Estate Fund for ALS Support

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Lois Altman was one of the most outgoing, personable, and honest individuals. Always glamorous, she was known for her chic style, love of dancing and laughter, and her warm, effervescent…

From Coast to Coast: Dean Mauriello Drives ALS Awareness in Tribute to His Mother

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Dean Mauriello is shining “a light on the resilience, diversity, and daily challenges of people living with ALS—one heartfelt, on‑camera story at a time—while also raising funds for ALS United’s…

A Song for ALS: My Journey to Organizing a Benefit Concert

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By Wayne Warnecke It was August 2020 when I first began to notice subtle changes in my body—slight difficulty with breath control during physical activity, trouble standing upright, intermittent muscle…

Empowered Journeys: New Program Offers Life-Affirming Travel Opportunities  

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With a generous grant from The Sunshine Foundation, we have been delighted and honored to offer a new program providing quality-of-life transportation support to people living with ALS in our…

Strength to Bloom: Honoring My Father, Empowering Others 

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My name is Lauren Garcia-Marcigliano, and on March 2, 2025, I was crowned Mrs. New Jersey International—a moment that represents far more than a title. It is a platform, a…

An Unforgettable Night of Music, Community, and Hope: A Night for Wayne Warnecke Draws 300 in Support of ALS United Greater New York

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Overflowing with talent, heart, and community spirit, Musicians United for ALS: A Night for Wayne Warnecke brought together 300 guests for an unforgettable evening benefiting ALS United Greater New York.…

Advocating for Change: ALS United Greater New York Leads the Way 

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ALS United Greater New York remains deeply committed to driving systemic change through strong advocacy at the federal, state, and local levels. In just the first five months of this…

The Threat to ALS Research

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Urgent Threat to ALS Research Funding A Continuing Resolution (CR) passed by the House now heads to the Senate, posing a significant threat to ALS research. This measure slashes funding…

NIH Must Reverse and Retract Cap of Indirect Cost Rates

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ALS United Greater New York stands with the ALS community nationwide in opposing devastating cuts to research grants at the National Institutes of Health (NIH). We strongly urge the National…

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