News & Publications

Maritza Namuche was diagnosed with ALS in 2024, and her diagnosis has not stopped her from creating beauty. From a young age, Maritza was fortunate to learn the art of…

Feb. 7, 2025 /PRNewswire/ — Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS…

In the spirit of Thanksgiving, Sandy and I will spend the day gathered at a large table surrounded by friends and family at Charlie Brown’s, the very restaurant where we…

My mom’s slow-progressing symptoms began to worsen as the world shut down in 2020. The isolation blurred my perception of her reality, and it took me time to grasp the…

In 1983, I spent two years teaching English in Japan. Around 1984, my parents came to visit, and it was during that trip that I first heard about ALS. My…

The ALS United Greater New York community gathered on November 12, 2024, for the annual Lou Gehrig Legacy Gala, a night dedicated to reflecting on the strides made in ALS…

ALS United Greater New York remains steadfast in its mission to support families affected by ALS, extending assistance across all aspects of care. One area of focus is helping families…

In 2014, a forward-thinking team launched a pilot project to provide specialized care for veterans with ALS at the James J. Peters Veterans Affairs Medical Center (Bronx VA). Dr. Marinella…

Researchers at Stony Brook University are working on an innovative project to aid ALS patients and their caregivers using artificial intelligence (AI) and robotics. The project, supported by a $1.5…

On a bright morning in New York City, ALS United Greater New York began the day by ringing the opening bell at Nasdaq, marking the 10th Anniversary of the Ice…